Data Release 11.0


RELEASE ANNOUNCEMENT DATE: 06/04/2024

RELEASED DATA CUTOFF DATE: 11/23/2022


RELEASE CONTENTS

  • Phenotypic data
    • New datasets: n = 728
    • Total datasets: n = 4867
  • Neuroimaging data
    • EEG and Eyetracking
      • New datasets: n = 572
      • Total datasets: n = 4142
    • Multi-modal MRI
      • New datasets: n = 459
      • Total datasets: n = 3905

WEBSITE AND DOCUMENTATION UPDATE

April 2024

The HBN website and documentation has undergone a significant update and improvement, which includes:


DATA ADDITIONS

November 2022

  • Phenotypic Data:
    • The CoRonavIruS Health Impact Survey (CRISIS) data for Healthy Brain Network participants have been added into the release (only on LORIS). Data was collected at two time points: April 2020 and February 2021. For more information about CRISIS please visit the Crisis Survey

DATA FIXES

November 2022

  • Phenotypic Data:
    • Removed duplicated rows for the following Assessments:
      • Child Behavior Checklist – Teacher Report Form (TRF)
      • Daily Meds
    • Fixed assessments on COINS that had duplicated participants due to upload errors into COINS platform. Assessments that may have experienced this error are:
      • CFS
      • GARS
      • GRIT
      • GSE
      • IUQ_P
      • IUQ_SR
      • KSADS
      • PBS
      • Peds_Migraine
      • PMHS
      • PreInt_Lang
      • RemoteTask
      • TBI
      • WAIS
      • WISC

April 2024

  • Phenotypic Data:
    • Separated Diagnosis_KSADS into three instruments: Diagnosis_KSADS_T, Diagnosis_KSADS_P, Diagnosis_KSADS_D (teen, parent, clinician)
    • Removed duplicated participants from HBN_R4_Pheno, HBN_R7_Pheno, HBN_R8_Pheno, HBN_R10_Pheno
    • Removed the following duplicate instruments from LORIS:
      • AUDIT (duplicate of Audit)
    • Renamed the following instruments on LORIS:
      • ARI_S -> ARI_SR
      • Bia_final -> BIA
      • FFQ_final -> FFQ
      • temp_disc_final -> Temp_Disc_Final
    • Indicated in SRS_Pre data dictionary that the T-Score standardization is based on a sample of children <4.5 years old and thus might be inaccurate for children above this age
    • Fixed the coding of the following data dictionaries:
      • CPIC
      • DTS
      • GRIT
      • ICU_P
      • ICU_SR
      • SCQ
      • SDQ
      • SRS
      • SRS_Pre
      • STAI

OTHER FIXES AND UPDATES:

  • As of April 2024 we are investigating data overlaps between the following instruments on LORIS:
    • ACE_Flanker and ACE_FLANKER
    • TRF_P and TRF_Pre
    • CELF_Meta and CELF5_Meta
    • PhenX_School and PhenX_SchoolRisk
    • PreInt_FamHx and PreInt_FamHx_RDC
  • While all EEG participants have age and sex data available, not all EEG participants have phenotypic assessment data available at this time. Those data items will be released in Release 12. Find links to imaging data downloads on our data portal.